This is essentially what I put on my bracelet (with the names changed to protect the innocent.)
I have started wearing it. It freaked my wife out a little. She wanted to make sure I wasn't having premonitions of car accidents or anything like that. I told her no. Since I am not. But I think it hit her panic button a little.
As you know I got it for the trip to Hawaii, which I must say I am very excited for. But I also decided that it would be a great way to bring up CF with others. So far no takers, but I know that there will be some as time moves on. I see people notice it, but so far no one at my new job has the guts to ask.
So the other question to ask is, when people hear me cough, and say, "Bad Cold huh?" Does it make them think when I say, "No, I have Cystic Fibrosis".
Most people just say, ahh! And let it go. But you can bet that they think of it when they see something on the news or read it on the web. Just trying to give a face to the name.
1 comment:
I get that question a lot when I cough too. I also get the "bad cold?" remark a lot in general since my voice is often a bit scratchy.
Have you seen those T-shirts that say--in very tiny print--"if you can read this, you now have SARS"? We oughta have something like that made that has a list of andswers to FAQ about the cough.
I've joked about writing an autobiography and calling it "Mein Cough". Think people would buy it?
*note* no anti-semitism implied by the name
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